CommuniCare: Improving communication for people with aphasia
Aphasia is one of the most severe consequences of a stroke. A person with aphasia can no longer say what they want or mean to say. This programme aims to improve communication and access to information for people with aphasia and their loved ones.
Objective
The purpose of the CommuniCare project is to develop and test a specific intervention. The project revolves around improving communication and access to information for people with aphasia and their loved ones.
Results
We developed a training programme for healthcare providers to help them to minimize the consequences of communication issues relating to people with aphasia. So far, around 150 healthcare professionals from seven healthcare institutions have followed the training programme. We have also developed a digital point of information for relatives of people with aphasia. This provides relatives with information about aphasia, its consequences and what they can expect from treatment. Relatives are currently being actively supported in the seven healthcare institutions involved. Their own health is monitored, in addition to the health of the person with aphasia
For more information, see our project website (in Dutch).
Duration
01 February 2018 - 01 February 2020
Approach
In 2018 we developed two programmes based on the wishes and needs of people with aphasia, their relatives and care professionals. The first involves an intervention for healthcare professionals to improve communication with people with aphasia. The second is an intervention for the relatives to provide them with information and to monitor their own well-being.
In 2019, the interventions were implemented in five healthcare institutions. We evaluated the outcome of these interventions from the perspective of both the users and the recipients. In addition, we will evaluate the process of implementing the interventions. Based on the outcome, a plan will be written for the further implementation of the interventions at various healthcare institutions.
HU researchers involved in the research
Collaboration with knowledge partners
- Research Centre of Excellence in Rehabilitation Medicine Utrecht
- HAN University of Applied Sciences: Research Group for Neurorehabilitation
- Thomas More University of Applied Sciences in Antwerp: Speech Therapy and Nursing Studies
- Hersenletsel.nl
- Vereniging Afasie vzw
Healthcare institutions:
- Antwerp University Hospital
- Zorggroep Maas & Waal
- Vivium Zorggroep locatie Naarderheem
- RevArte Ziekenhuis
Knowledge Network Partners:
- Isala Ziekenhuis Zwolle
Co-financing:
We are funded by the Taskforce for Applied Research.