CommuniCare: Improving communication for people with aphasia

Older woman talking to therapist

Aphasia is one of the most severe consequences of a stroke. A person with aphasia can no longer say what they want or mean to say. This programme aims to improve communication and access to information for people with aphasia and their loved ones.

Objective

The purpose of the CommuniCare project is to develop and test a specific intervention. The project revolves around improving communication and access to information for people with aphasia and their loved ones.

Results

We developed a training programme for healthcare providers to help them to minimize the consequences of communication issues relating to people with aphasia. So far, around 150 healthcare professionals from seven healthcare institutions have followed the training programme. We have also developed a digital point of information for relatives of people with aphasia. This provides relatives with information about aphasia, its consequences and what they can expect from treatment. Relatives are currently being actively supported in the seven healthcare institutions involved. Their own health is monitored, in addition to the health of the person with aphasia

For more information, see our project website (in Dutch).

Duration

01 February 2018 - 01 February 2020

Approach

In 2018 we developed two programmes based on the wishes and needs of people with aphasia, their relatives and care professionals.  The first involves an intervention for healthcare professionals to improve communication with people with aphasia. The second is an intervention for the relatives to provide them with information and to monitor their own well-being.

In 2019, the interventions were implemented in five healthcare institutions. We evaluated the outcome of these interventions from the perspective of both the users and the recipients. In addition, we will evaluate the process of implementing the interventions. Based on the outcome, a plan will be written for the further implementation of the interventions at various healthcare institutions.

 

HU researchers involved in the research

  • Maren van Rijssen | Researcher | Research group Speech and Language Therapy: Participation through communication
    Maren van Rijssen
    • Researcher
    • Research groups: Speech and Language Therapy: Participation through communication
  • Marloes Veldkamp | Researcher | Research group Speech and Language Therapy: Participation through communication
    Marloes Veldkamp
    • Researcher
    • Research groups: Speech and Language Therapy: Participation through communication
  • Nicole ter Wal Tournai | Researcher | Research group Speech and Language Therapy: Participation through communication
    Nicole ter Wal
    • Researcher
    • Research groups: Speech and Language Therapy: Participation through communication
  • Lizet van Ewijk | Researcher | Research group Speech and Language Therapy: Participation through communication
    Lizet van Ewijk
    • Researcher
    • Research groups: Speech and Language Therapy: Participation through communication
  • Ellen Gerrits | Professor | Research group Speech and Language Therapy: Participation through communication
    Ellen Gerrits
    • Professor
    • Research groups: Speech and Language Therapy: Participation through communication
  • Jeroen van Grondelle | Rearcher | Research group Digital Smart Services
    Jeroen van Grondelle
    • Researcher
    • Research groups: Digital Ethics

Collaboration with knowledge partners

Knowledge partners:
  • Research Centre of Excellence in Rehabilitation Medicine Utrecht
  • HAN University of Applied Sciences: Research Group for Neurorehabilitation
  • Thomas More University of Applied Sciences in Antwerp: Speech Therapy and Nursing Studies
  • Hersenletsel.nl
  • Vereniging Afasie vzw

Healthcare institutions:

  • Antwerp University Hospital
  • Zorggroep Maas & Waal
  • Vivium Zorggroep locatie Naarderheem
  • RevArte Ziekenhuis

Knowledge Network Partners:

  • Isala Ziekenhuis Zwolle

Co-financing:
We are funded by the Taskforce for Applied Research.

Would you like to collaborate or do you have any questions?

Ellen Gerrits | Professor | Research group Speech and Language Therapy: Participation through communication

Ellen Gerrits

  • Professor
  • Research group: Speech and Language Therapy: Participation through communication