Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia

Authors Jacoba Huizenga , Aukelien Scheffelaar , Agnetha Fruijtier , Jean-Pierre Wilken , Nienke Bleijenberg , Tine van Regenmortel
Published in International Journal of Environmental Research and Public Health
Publication date 2022
Research groups Participation, Care and Support
Type Article


Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.

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On this publication contributed

  • Jacoba Huizinga | PhD Candidate| Participation Care and Support
    Jacoba Huizenga
    • PhD candidate
    • Research groups: Participation, Care and Support, Proactive care for elderly people living at home
  • Jean Pierre Wilken | Professor | Participation, Care and Support
    Jean-Pierre Wilken
    • Professor
    • Research groups: Participation, Care and Support
  • Nienke Bleijenberg PhD | Professor | Research group Chronic Diseases
    Nienke Bleijenberg
    • Professor
    • Research groups: Proactive care for elderly people living at home

Language English
Published in International Journal of Environmental Research and Public Health
Key words dementia, mild cognitive impairment, lived experience, everyday life, citizenship, living in the community