Ellen works at the Research group Participation, Care and Support and is coordinator of the Care in Balance programme line, which focuses on people with cognitive impairments such as dementia, LVB and Nah and their informal caregivers, with special attention for the cooperation between informal caregivers and professionals.
Her own experience as an informal caregiver was the impetus for her research into the areas of rehabilitation, daytime activity, welfare, volunteer organisations, nursing homes and residential locations. The research projects in which she is involved entail working together with patient associations, interest groups and development workshops. In addition to her research activities, Ellen works as a lecturer for the Social Work degree programme.
"The relationship is central to informal care: you support them precisely because it concerns your partner or your mother. That is why many caregivers don’t recognise themselves in the term 'informal care': it’s natural, you just do it!"
Ellen has contributed to the three e-learning modules: www.e-learningmoduleinformelezorg.nl. These modules are aimed at helping students and professionals develop skills to improve cooperation with informal caregivers.
Fields of expertise
- Non-congenital brain injury
- Informal care
- Collaboration between professionals and informal caregivers