Chronic Sorrow

A research on Chronic Sorrow: parents’ grief and loss experiences in relation to their child’s disability. What do parents feel and experience, how do these experiences develop and how can professionals support parents in chronic sorrow?

Objective

The aim of the research is to understand parents’ experiences of chronic sorrow better and in relation to that, to do recommendations on how to support parents in these experiences, and to fill in the concept of chronic sorrow.

Results

  • Meaningful stories from parents and professionals
  • A dialogue between parents and professionals
  • Recommendations for professionals

Relevance

One of the results of the research will be recommendations for practice; both caregivers and students can learn how to attune to the needs, wishes and desires of parents with a child with a disability who experience chronic sorrow.

Duration

17 August 2020 - 17 August 2024

Approach

Overarching design: Participative Action Research. Within the design: Interpretative Phenomenological Analysis of experiences of parents and professionals of chronic sorrow. Followed by story workshops with parents between themselves and parents and professionals together.

HU researchers involved in the research

  • Edith Raap | Researcher | Innovative Social Services
    Edith Raap
    • PhD candidate
    • Research groups: Innovative Social Services
  • Lia van Doorn | Professor | Research group Innovative Social Services
    Lia van Doorn
    • Professor
    • Research groups: Innovative Social Services

Related research groups

Would you like to collaborate or do you have any questions?

Edith Raap | Researcher | Innovative Social Services

Edith Raap

  • PhD candidate
  • Research group: Innovative Social Services