A research on Chronic Sorrow: parents’ grief and loss experiences in relation to their child’s disability. What do parents feel and experience, how do these experiences develop and how can professionals support parents in chronic sorrow?
The aim of the research is to understand parents’ experiences of chronic sorrow better and in relation to that, to do recommendations on how to support parents in these experiences, and to fill in the concept of chronic sorrow.
- Meaningful stories from parents and professionals
- A dialogue between parents and professionals
- Recommendations for professionals
One of the results of the research will be recommendations for practice; both caregivers and students can learn how to attune to the needs, wishes and desires of parents with a child with a disability who experience chronic sorrow.
17 August 2020 - 17 August 2024
Overarching design: Participative Action Research. Within the design: Interpretative Phenomenological Analysis of experiences of parents and professionals of chronic sorrow. Followed by story workshops with parents between themselves and parents and professionals together.