Inclusive collaboration around people with an intellectual disability

Differences in position, status and communication skills can hinder good cooperation in supporting people with intellectual disabilities. How can an equal collaboration be established in the triangle of clients, professionals and important people from the client's network?

Objective

The project aims to improve communication and cooperation between, people with an intellectual disability, support workers and family carers.

"Clients and family members have a lot of experiential knowledge. This knowledge is often insufficiently used in healthcare"

Jean-Pierre Wilken

Results

The project aims to deliver the following results:

  • a set of dialogical forms of communication and consultation, in line with the principles of transdisciplinary cooperation, in order to improve the quality-of-care relationships and how ICT applications can be supportive in this regard;
  • refining the method of 'The CARe Model' and the method of personal future and support planning so that it can be used as a means for co-creation of care and support, aimed at quality of life;
  • a training that supports implementation of both products in education and practice.

Approach

In 2021 and 2022, two so-called Communities of Development (in Utrecht / Baarn and Amsterdam) will be working on designing and testing working methods that contribute to good communication and cooperation. A Community of Development consists of 10-15 people, representing all actors and perspectives.

Duration

15 December 2020 - 15 June 2023

Relevance

The project develops concrete methods and tools that contribute to dialogue, shared decision-making and the design of personal future plans and support plans. This knowledge can be used in both education and professional practice.

Co-financing

The project has received a grant from ZonMw (project number: 639003914) as part of the Long-term Care and Support Research & Development Programme.

HU researchers involved in the research

  • Sascha van Gijzel | Researcher | Participation, Care and Support
    Sascha van Gijzel
    • Researcher
    • Research groups: Participation, Care and Support
  • Jeroen Knevel
    • PhD candidate
    • Research groups: Participation, Care and Support
  • Jean Pierre Wilken | Professor | Participation, Care and Support
    Jean-Pierre Wilken
    • Professor
    • Research groups: Participation, Care and Support
  • Henk Roelfsema | Teacher-researcher | Participation, Care and Support
    Henk Roelfsema
    • Teacher-researcher
    • Research groups: Participation, Care and Support

Related research groups

Collaboration with knowledge partners

Would you like to collaborate or do you have any questions?

Sascha van Gijzel | Researcher | Participation, Care and Support

Sascha van Gijzel

  • Researcher
  • Research group: Participation, Care and Support